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My Experience with Fibroids and Learning about Endometriosis

Fibroids and Endometriosis



In April 2017, after bleeding in between periods, I found out I had 3 fibroids measuring 1.7 cm, 4.7 cm and 5.7 cm and a small cyst on my left ovary. Did I know what they were? Of course not! The doctor went further to enquire about my family planning timeline as he encouraged me to get pregnant within a year and then proceed to remove them within the next 2-3 years. 

So first things first, what are fibroids? Fibroids are non-cancerous growths that develop in or around the womb (uterus). The growths are made up of muscle and fibrous tissue and vary in size.

Having a child isn't an option as I am an unmarried Christian woman which means sex outside of marriage is a sin. I made the decision to engage in watchful waiting for the remainder of the year. How fast could they possibly grow within a year?

So let us fast forward to January 2018. I realized my tummy was protruding like that of a woman in her second trimester of pregnancy, I was unable to hold my urine for extended periods, I was lethargic, nauseous and just uncomfortable in every aspect of the word. I had my first period when I was 10 years old. For as long as I can remember, I am always having terrible cramps. However, this particular period was the worst by farrrrr. I was curled up in a ball in my mother’s living room swallowing pain killer after pain killer while praying, surely I was going to die. My abdomen and lower back felt as though someone was inside running around with a saw recklessly and ripping them a part, I couldn’t eat, lay still or stand. It was horrible! I have heavy flows that typically last between 7-9 days.  It was during this period that my doctors made the decision to stop my period until after the surgery. 

I was referred by my GP to deliver my “babies”, it was time. I visited a gynae, one of the best I was told, and was ordered to do another ultrasound and by this time the fibroids were now 7.1 x 5.7 cm, 6.8 cm submucosal and 5.2 cm. The endometrium was distorted. I was made aware of my options: surgery or surgery lol and so I opted for surgery – a myomectomy which is a surgical procedure to remove fibroids while the uterus remains preserved so that I could retain my reproductive potential for my many children to come ☺☺. I was excited because FINALLY I would be able to go back to my normal routine of living.

Two weeks before the surgery, I began feeling a burning sensation in my lower left abdomen; I visited my gynae and was informed that it could be a urinary tract infection. She prescribed some meds and sent me to do a test to confirm/dispel her theory. I stopped at the pharmacy that very evening because there was no way I could possible survive the night without some pain relievers. I took the meds as prescribed and I was up the entire night in pain, it’s one of those pains that have you twisting and turning whenever you close your eyes in an attempt to respond to your body’s need to sleep. It was awful! I went to the hospital the following morning. They did their checks as well and believed too that it could be a urinary tract infection even though all of their tests came back negative. I did an ultrasound but the docs were unable to see into my pelvic region because my large fibroids were blocking them. I got morphine, voltaren and Panadol, the pain was consistent. I was later sent home with pain killers that night with a suspected case of urinary tract infection. It was difficult to get to work each morning as I was always tired and having some level of discomfort. I feared eating because I didn’t want to throw up or deal with being nauseous. The nature of my job requires that I respond to internal and external customers on the minute daily. It was difficult but the grace of God carried me.

 Surgery Day! – So long bye bye Fibroids! ☺☺☺

March 22, 2018 was one of the happiest days of my life. My life will finally go back to being normal and I will never have to go through this again or so I thought. I went in, was prep for surgery and then I was off. I left for surgery around 8:30 p.m. My mother and aunt was with me, they told me I was brought back to my room around 12:30 a.m. I remember opening my eyes for the first time at 4 a.m. but fell back asleep. I later woke up with what seemed to be a smile on my face and in my heart…FINALLY! Lol I touched my tummy to confirm that they were actually taken out. My doc did the usual patient visit to update me on how the surgery went. Before she even spoke a word, I rehearsed it. “Ms. Brown, your surgery was a success and it went well. After 6 weeks, you will be able to return to your regular activities but please be patient with your healing process.”

It didn't go quite as planned. She came in my room and asked chirpily, “How are you feeling Ms. Brown?”  to which I responded, “I am feeling great!” she then further stated, “Well I removed 8 fibroids, a cyst on your left ovary and I found some endometriosis but we can talk about that later.” I was a bit surprised but hey, it sounded like she found that “endo thing” and dealt with it. If I could, I would have had a celebration…so long bye bye Fibroids!

 Well…hello Endometriosis *rolls eyes* 

My period came two weeks after the surgery with a vengeance! I went back to my gynae, who gave me three injections for the pain and to slow down the bleeding. I thought this was just a part of the process. I went for my 6 weeks check up when my doctor explained to me what exactly transpired in the surgery. I was informed that my biggest fibroid measured 12 cm and I had 5 large fibroids stacked on top of each other and 3 smaller fibroids located in the cervix. My blood pressure escalated in the surgery but I was given meds and was stabilized quickly. I didn’t have cancer *do the cancer-free dance*. Typically, there is a 5 year window before the fibroids return. I was informed that I have stage 3 endometriosis. Endometriosis is a condition in which the endometrium, the layer of tissue that normally covers the inside of the uterus, grows outside of it. Most often this is on the ovaries, fallopian tubes and tissue around the uterus and ovaries; however in rare cases it may also occur in other parts of the body. Endometriosis has 4 stages which are evaluated by the location, extent and depth of the endometrial implants, presence and size of endometriomas (chocolate cysts – gets its name because over time the blood inside of the cyst turns dark red and brown) and severity of adhesions: Stage 1 – Minimal, Stage 2 – Mild, Stage 3 – Moderate and stage 4 – Severe. That was the cause for the burning pain/sensation I had prior to surgery, endometriomas located on my left ovary. They removed as much of the endometrial implant as they could but they couldn’t remove everything.

So now, what’s the way forward? They decided to stop my period for 3 months to allow the uterus to heal – my womb is basically in a menopausal state where there is no activity so as to prevent any endometrial tissue spreading and causing more adhesion while the uterus heals itself. I was told that after the 3 months, I should not be in any pain when menstruating. I laughed so hard when my doc said that. I couldn’t process his words…no pain…lol well I am still in Month 1, I will update you and let you know if it was mere theory.

My Mental Capacity

Now this is where the cookie and everything else crumbled. I just had enough energy and strength within me to deal with fibroids and all its complications. Now here I am, my fibroid journey was finish, but I was starting a new journey without warning. I was confused. I cried bitterly before the Lord. I became very vulnerable. I cried for days. Lord you saw how I struggled with fibroids, the sleepless nights, constant discomfort, weight loss…everything! Lord you more than anyone else knows my insecurities. As I sit in bed and write this blog in the wee hours of the morning, exactly 2 months after surgery I keep adjusting my sitting position as the tenderness and hardness of the wound is a constant reminder of my current reality. How will I deal with this? No man will want a woman with so many issues and complexities. I felt alone and hurt. I was disappointed. It was through this period I started studying the scriptures intentionally for a word of comfort. It was through this journey that the spirit of the Lord reminded me that I wasn’t alone and his plans for me are perfect and complete. I should trust Him. Many have gone before me with similar issues and he delivered them. Women such as Hannah, Sarah and Rachel have proven that the Lord can be trusted, he is still in control and He is close to the broken-hearted. I found this funny but I was reminded that the similarities between these women are that they were all married and I am single. I was reminded to not become consumed or overly concerned with issues that I am not in the season to really address or demonstrate the power and glory of God. Because of who God is and who we are to Him, we can pray with confidence, as beloved children speaking to a loving father. We can persist in prayer with unwavering peace, trusting that God is at work even if we do not receive an immediate answer. So as you wait upon God in prayer, don’t let despair set in. instead, press on with God’s promise that He is working “in you to will and to act in order to fulfill his good purpose” (Philippians 2:13)

I will admit that I still struggle with accepting that I have endometriosis and what this really means for my future. There are good days when I am sure that God will deliver me and help me and there are days when my heart become overwhelmed especially after reading and seeing how this illness have destroyed lives, relationships and self worth. As I reflect over my life, there is ALWAYS something happening. I felt drained and emotionally exhausted. I am tired of doctors and I tired over all. There is a will and desire within me, not merely to survive but to live and thrive. 
Be Encouraged…not by might nor power but by the Spirit of God (Zachariah 4:6)
A common question asked by my many is, “God why am I going through this?” Most ask this question out of deep hurt, a longing for God to reveal himself or from a place of bitterness. When the disciples encountered a blind man from birth, they asked Jesus a similar question, “Rabbi, who sinned, this man or his parents that he was born blind? Essentially they were asking, who is to be blamed for this man’s affliction? Most Jews believed that illness was a direct result of sin. Jesus responded in John 9:3, ‘this happened so that the works of God might be displayed in him.” Similarly, in Exodus 9:16 where the Lord allowed Pharaoh’s heart to be hardened so that he might demonstrate his power and his name proclaimed.

So as we encounter this red sea moment/season, let us be reminded that our strength and might did not take us this far but the Spirit of our Lord and Saviour, all to His glory and praise. Lord I give you my desires, intentions and I yield all my worship to you.

Keep pressing and keep going – trusting in our Sovereign God. It's very beneficial to have a support base that will talk with you when you are having a break down and encourage you. People who will be able to encourage you and not treat you less than a person after hearing you vent. Also be an encourager, I like to encourage people. It does make me feel better as well but invest your time in others and make a decision each day to live and not merely survive.



Comments

michi said…
normally at this time i would read my daily scripture but i decided to browse Facebook and as i scroll down i saw your story and decided to read. i must say you show great strength in the time of pain and i hope as you travel this journey with God by your side you will overcome it in victory
Shantana Brown said…
Atara, my strength had failed and left me but the Word of God stands true that His grace is sufficient for us: for my strength is made perfect in weakness. Thank you for stopping by and remain encouraged in the Lord :)